Genetic Testing
Dr Wendy Bonython and Bruce Baer Arnold raise important legal and social issues of consumer protection, privacy, consent and discrimination in their chapter on Genetic Testing. The low level of genetic literacy among the general population, combined with an increased appetite for genetic information and direct availability of genetic tests to consumer is a dangerous prescription for new types of discrimination in the workplace and service delivery.
The examples of the unintended potential future career consequences of testing conducted “for fun” remind us of the need to consider our approach to this area carefully. This work is overdue as the last major pieces of legal policy work were a decade ago, such as the Genetic Discrimination Project 2002-2005. The Australian Law Reform Commission 2003 Report recommended changes to the Commonwealth Disability Discrimination Act 1992 to explicitly protect against genetic discrimination, although it appears to be generally covered in the protections against disability discrimination at the Federal and at State and Territory levels.
Source:
Easteal Patricia (ed.). Justice Connections. Cambridge Scholars Publishing,2014. — 322 p.. 2014
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