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COUNSELING PARENTS OF SERIOUS/ TERMINALLY ILL CHILD

Breaking the bad news to parents about their children, is a very difficult task, which should be handled with care. While many protocols, e.g. Spikes protocol, have been suggested for this purpose, basic considerations are as follows:

• Prepare in advance about what and how much infor­mation must be conveyed?

• Ensure privacy and confidentiality.

It is better to have a dedicated counseling room for this purpose.

• Assess the level of understanding and expectation of the parents/relatives.

• Use simple language for honest communication, being sensitive and careful to the nonverbal language/clues.

• Provide the realistic assessment and avoid false reassurances.

• Allow enough time for parents/relatives to assimilate the information and respect their emotions

• Offers them alternative options and respect their choices.

• Document the counseling session, though audio/ video-recording is usually not necessary.

27.4.9

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Source: Agrawal M.. Textbook of Pediatrics. 3rd ed. — CBS Publishers,2025. — 973 p.. 2025
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